In early 2016 I learned that I have idiopathic pulmonary fibrosis (IPF), an incurable and progressive lung disease. This blog chronicles my experiences as a person with a life-ending disease. Many people have similar stories, and I hope that this blog helps other people living with terminal or chronic diseases understand that they are not alone in what they experience. I also hope that the blog helps family members and friends of patients understand better what the patient experiences.
Note: I attempt to relate events and to portray people accurately in this blog; nothing is fictionalized unless expressly stated as such. However, all names are pseudonyms in order to respect people’s privacy. If you know the identity of anyone featured in this blog, please respect their privacy by not sharing that information with others. Thank you.
Egressing 